Complete Patient Guide

How Clinical Trials Work

Your comprehensive guide to understanding clinical research from start to finish

Written by

Sarah Mitchell

MSN, RN

Clinical Research Nurse

Medically reviewed by

Dr. Michael Chen

MD, PhD

on December 15, 2024

Published: October 1, 2024
Last updated: December 18, 2024

Understanding Trial Phases

Clinical trials progress through distinct phases, each designed to answer specific questions about safety and effectiveness

3-6 years

Preclinical: Laboratory & Animal Testing

Participants: No human participants

Purpose: Test safety and efficacy in lab settings before human trials

Your Journey as a Participant

What to expect from initial interest to trial completion

1

Finding the Right Trial

Search databases or work with your doctor to identify trials for your condition

Use ClinicalTrials.gov
Ask your healthcare team
Consider location and time commitment
2

Screening & Eligibility

Meet with the research team to determine if you qualify for the trial

Bring medical records
Ask questions about the trial
Understand inclusion/exclusion criteria
3

Informed Consent

Review all trial details and sign consent forms if you decide to participate

Take time to decide
Discuss with family
Ask about costs and compensation
4

Baseline Assessment

Complete initial tests and evaluations to establish your starting health status

May include blood tests
Physical examinations
Quality of life questionnaires
5

Treatment Period

Receive the study treatment and attend regular monitoring visits

Follow protocol exactly
Report all side effects
Keep all appointments
6

Follow-up

Continue monitoring after treatment ends to track long-term effects

May last months or years
Important for safety data
Results shared when available

Your Safety is Our Priority

Multiple layers of protection ensure participant safety throughout every trial

Institutional Review Board (IRB)

Independent committee that reviews and monitors all trials to protect participant safety and rights

Informed Consent Process

Detailed explanation of risks, benefits, and your rights before you decide to participate

Data Safety Monitoring Board

Independent experts who regularly review trial data to ensure participant safety

Right to Withdraw

You can leave a trial at any time, for any reason, without affecting your regular medical care

Regular Safety Checkups

Frequent monitoring of your health throughout the trial with immediate access to medical care

FDA Oversight

All trials must follow strict FDA guidelines and undergo regular inspections

Common Questions

Get answers to frequently asked questions about clinical trial participation

Will I receive a placebo?

Not all trials use placebos. When they do, you'll be informed during consent. Many trials compare new treatments to existing standard care rather than placebos.

What costs am I responsible for?

The study treatment and trial-related tests are typically free. Your regular medical care and travel costs may or may not be covered. Always clarify costs upfront.

Can I continue my current medications?

It depends on the trial. Some medications may interfere with the study treatment. The research team will review all your medications during screening.

What if I experience side effects?

You'll have 24/7 access to the medical team. All side effects are closely monitored and treated. You can withdraw from the trial at any time if needed.

Will my privacy be protected?

Yes. Your personal information is kept confidential and protected by HIPAA laws. Published results never include identifying information.

How do I know if a trial is legitimate?

Legitimate trials are registered on ClinicalTrials.gov, have IRB approval, never ask for payment to participate, and provide detailed informed consent.

Important Documents to Understand

Key paperwork you'll encounter during the trial process

Informed Consent Form

  • Detailed explanation of the trial
  • All known risks and benefits
  • Your rights as a participant
  • Contact information for questions

Clinical Trial Agreement

  • Schedule of visits and procedures
  • Compensation details if applicable
  • Insurance and injury coverage
  • Data sharing and privacy policies

Ready to Learn More?

Take the next step in your clinical trial journey with confidence