Understanding Your Loved One's Diagnosis
A guide to help you learn about and understand medical conditions so you can provide better support
Receiving a medical diagnosis for a loved one can be overwhelming. Medical terminology can be confusing, and it's natural to feel uncertain about what the diagnosis means and what comes next. This guide will help you navigate the process of understanding a diagnosis and empower you to be an effective advocate for your loved one.
Gather Information
Collect all medical records, test results, and documentation related to the diagnosis
- •Request copies of all medical reports
- •Keep a binder or digital folder organized by date
- •Ask for written summaries from each doctor visit
- •Document dates of diagnoses and key findings
Learn the Basics
Understand what the diagnosis means in simple terms
- •Ask your doctor to explain in plain language
- •Research reputable medical sources (Mayo Clinic, WebMD, medical associations)
- •Understand the difference between the condition and its symptoms
- •Learn about the typical progression or course of the disease
Understand Treatment Options
Learn about available treatments and their goals
- •Ask about standard treatment protocols
- •Inquire about clinical trials and experimental options
- •Understand the goals of treatment (cure, management, comfort)
- •Learn about potential side effects and risks
Ask Questions
Prepare questions for healthcare providers
- •Write down questions before appointments
- •Bring a notebook to record answers
- •Don't hesitate to ask for clarification
- •Consider bringing a family member or friend to appointments
Find Support
Connect with others who understand the diagnosis
- •Join condition-specific support groups
- •Connect with online communities
- •Find local resources and organizations
- •Consider speaking with a patient advocate
Additional Resources
Need Help Understanding a Specific Diagnosis?
Our patient advocates can help you navigate medical information and connect you with resources specific to your loved one's condition.
Contact Our Team